SAMAG is a registered, Non-Profit support group which is relentlessly working for the cause of “Ataxia” and “Muscular Dystrophies”- a set of Neuro Muscular degenerative disorders resulting in body imbalance and heart problems which gradually worsens until the victim becomes totally incapacitated. At present, there is no known cure in this world for this disorder.
SAMAG was founded by Chandu George in 2006 in Hyderabad, India with a vision to spread awareness about Ataxia and to provide information and counseling to families coping with Ataxia. Journey has been difficult for this budding organization but thanks to the positive efforts of volunteers led by Chandu, SAMAG has slowly and steadily created awareness on Ataxia and has successfully paved the way to create a forum for Ataxians thus bringing in hope and voice for Ataxians in India.
Chandu George, belonging to a middle class family in Hyderabad, has grown from being a shy and introvert guy into a confident personality leading the way for better life for Ataxians. Diagnosed with Friedreich’s ataxia from the tender age of 14, Chandu realized very early that living with Ataxia was a part of his life and a reality. Over the years he has accepted this hard bitter truth in life and maintaining an ever optimistic attitude, he has strived relentlessly in building SAMAG, an effort to better the lives of families coping with this rare condition.